Support Groups
Support Group Network
The CurePSP Support Network encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to support group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases.
CurePSP is always seeking individuals interested is sharing their time with other patients, caregivers and family members. If you are interested in becoming a Support Group Leader or Communicator, please contact Kate DeSantis, Director of Outreach & Education, at 800-457-4777 or via e-mail at desantis@curepsp.org.
- CurePSP Support Groups
- CurePSP Communicator List
CurePSP Communicators are volunteers who are available to offer support by phone or e-mail. There may not be a communicator in your immediate area, but we encourage you to call any one of the contacts on this list. As you may know, your best resource is probably the person who is currently going through or went through what you are experiencing.
DISCLAIMER
The support groups, communicators and support group networks of the Foundation are provided for educational and informational purposes only (“Support Group Network”). This Support Group Network is not a substitute in any way for medical treatment, advice, diagnosis or treatment. Always seek the advice of your physician or other qualified heath provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have learned from the Support Group Network.
The Foundation does not recommend or endorse any specific tests, treatments, physicians, products, procedures, opinions, or other information that may be mentioned at the Support Group Network. Reliance on any information provided by the Foundation, Foundation employees, others in the Support Group Network at the invitation of the Foundation or other visitors to the Support Group Network is solely at your own risk. You should not rely on information you receive from or through the Support Group Network for any personal, medical or health decision, but should consult with a qualified professional for specific information suited to your case.
