Together, we can shape impactful policies, making our voices a force for change.
Thank you for being an advocate with CurePSP!
HEALTHY BRAINS Act
CurePSP was honored to be on Capitol Hill for the introduction of the Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (H.R. 9233) by Rep. Jennifer Wexton (D-VA) and Rep. Gus Bilirakis (R-FL). At this time, there is little research on the relationship between exposure to chemicals and the development of PSP, CBD or MSA, although correlations have been found with other diseases, such as Parkinson’s and ALS. This bipartisan legislation is the first of its kind to initiate research funding and coordination around environmental risk factors and neurodegenerative diseases.
Read the full text of the bill here.
Check out and share our informative flyer on the bill.
National Plan to End Parkinson’s Act
We asked for your help to pass the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton Plan to End Parkinson’s Act and the CurePSP community came through! You sent over 2,200 letters to your members of Congress, participated in multiple meetings with key congressional staff and spread the word about the bill to your networks about this bill that will coordinate federal efforts around preventing and treating the Parkinsonian diseases, including PSP, CBD and MSA.
After a groundswell of bipartisan support in both the House and Senate, the bill was signed into law by President Biden on July 2, 2024.
Read the full text of the bill here.
Continue to monitor this space, our social media and newsletters for updates as we track the work that is done as a result of this bill!