Latest News & Blogs from The Foundation
November 26, 2024
Leading International PSP and CBD Experts Convene at Neuro2024, Highlighting Impact of Collaboration in the Field
Rare disease research took another step forward as leading experts and industry professionals gathered in Toronto from October 24–25 for Neuro2024: Th...
News
November 19, 2024
CurePSP and Parkinson’s Foundation Train 100 Healthcare Professionals in PSP, CBD and MSA
CurePSP and the Parkinson’s Foundation continue to make rare neurodegenerative diseases more manageable for the medical community as they successfully...
News
October 31, 2024
CurePSP Hosts First In-Person Centers of Care Meeting, Advancing Collaborative Momentum in PSP, CBD and MSA Care
The energy and teamwork behind the CurePSP Centers of Care was palpable in Philadelphia, PA as CurePSP hosted the network’s first in-person meeting on...
News
October 22, 2024
Advancing Communication: The Latest in Assistive Speech Technology
Representative Jennifer Wexton delivering what is believed to be the first speech on the House floor ever given via a voice cloned by artificial intel...
Blog
September 18, 2024
New Scientific Paper from CurePSP and Centers of Care Seeks to Accelerate Early Diagnosis for Atypical Parkinsonian Disorders
The longer a diagnosis of PSP, CBD or MSA takes, the less time someone has to formulate a care plan, build a medical team or enroll in a potential cli...
News
September 10, 2024
CurePSP Receives $200,000 Contribution from the Rainwater Charitable Foundation in Partnership to Support Grant Program for Early-Career Scientists
NEW YORK, Sept. 10, 2024 /PRNewswire/ -- CurePSP is pleased to announce receipt of a $200,000 contribution from the Rainwater Charitable Foundation (R...
News
August 22, 2024
CurePSP Announces Growth of Care Network for Progressive Supranuclear Palsy and Related Diseases
NEW YORK, August 22, 2024 /PRNewswire/ — CurePSP has designated Barrow Neurological Institute, Cedars-Sinai Medical Center, the University of British...
News
August 09, 2024
CurePSP Launches The Collective Mind Podcast to Share the Latest in Advocacy, Care and Research
CurePSP is launching “The Collective Mind,” a new podcast that will share the experiences of experts from across the CurePSP network to educate and up...
News
August 08, 2024
CurePSP Awards a Record Number of Student Fellowship Grants, Promoting Student Interest in the Field
NEW YORK, August 8, 2024 /PRNewswire/ — CurePSP has announced a record number of student fellowship recipients, totaling ten projects between the Urso...
News
August 06, 2024
Canter Family’s Carol’s Research Challenge Raises $134,646 to Fuel Innovative Tauopathy Research
NEW YORK, August 6, 2024 /PRNewswire/ -- The Canter Family is proud to announce that they have raised $134,646 through their 2023 event, Carol’s...
News
July 25, 2024
Neuro2024 Looks to Build on Toronto’s Rich History of PSP Research
Sixty years ago in Toronto, progressive supranuclear palsy (PSP) was first described as a distinct syndrome by three scientists: John Steele, J Cliffo...
Blog
July 19, 2024
CurePSP Awards Record Number of Urso Student Fellowship Grants to Projects Answering Urgent Questions Around Tauopathies
CurePSP awarded a record number of Urso Student Fellowship Grants to students and trainees conducting projects that hope to answer questions in the pr...
News
July 17, 2024
The Foundation for the National Institutes of Health Announces Research Effort to Speed Parkinson’s Diagnosis and Enable Earlier Intervention
The Accelerating Medicines Partnership® in Parkinson’s Disease and Related Disorders (AMP® PDRD) will expedite identification of biomarkers to better...
News
July 15, 2024
CurePSP Awards the First Jim Atwood Neuroscience Student Fellowship Grants, Continuing Jim Atwood’s Love for Undergraduate Research
CurePSP has announced the recipients of the inaugural Jim Atwood Neuroscience Student Fellowship dedicated to projects that will uncover mysteries rel...
News
July 12, 2024
Congresswoman Jennifer Wexton Unveils AI-Generated Voice, Inspiring New Possibilities for PSP Community
Rep. Jennifer Wexton cried happy tears when she first heard her new — old — AI voice. She unveiled the new technology on Wednesday through a post on t...
News
July 10, 2024
The Rainwater Charitable Foundation, CurePSP and Aging Mind Foundation Announce $2 Million in Grants to Fund Innovative Research Projects from the Tauopathy Challenge Workshop
FORT WORTH, Texas, July 10 /PRNewswire/ -- The Rainwater Charitable Foundation (RCF), one of the largest independent funders of primary tauopathy rese...
News
July 02, 2024
Now Hiring: Marketing Manager
CurePSP seeks a Marketing Manager to work as part of the Marketing and Communications Team, reporting to the Director of Marketing and Communications....
Blog
June 07, 2024
CurePSP and Congresswoman Jennifer Wexton Advocate for Rare Diseases at Brain and Environment Symposium
The CurePSP team attended the Brain and Environment Symposium in Washington DC on May 20, exploring the impact of environmental toxins on brain h...
News
June 04, 2024
CurePSP and Congresswoman Wexton collaborate on congressional briefing on progressive supranuclear palsy
NEW YORK, June 4, 2024 /PRNewswire/ – CurePSP was on Capitol Hill on May 21 for a briefing focused on progressive supranuclear palsy (PSP). Often init...
News
May 24, 2024
Breaking News: The National Plan to End Parkinson’s Act Passes the Senate, Moves to the White House
The U.S. Senate unanimously passed the “Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act” yesterday, the firs...
News
May 24, 2024
Congress Rallies Around Colleague Jennifer Wexton as She Leads 100 Members in Bipartisan Resolution to Recognize May as PSP Awareness Month
Congresswoman Jennifer Wexton does not want sympathy. She wants the public to learn more about progressive supranuclear palsy (PSP), the disease affec...
News
May 23, 2024
Wexton Leads 100 Members in Bipartisan Resolution to Recognize May as PSP Awareness Month
Washington, DC – May 23, 2024 – Today, Congresswoman Jennifer Wexton (D-VA) introduced a bipartisan resolution to officially recognize May a...
News
May 22, 2024
Join Congresswoman Jennifer Wexton's Digital Day of Action for Month of Awareness!
CurePSP is joining forces with Congresswoman Jennifer Wexton and her team to spread awareness at a federal level for Month of Awareness! To continue b...
Blog
May 10, 2024
Introducing a Bill to the House Floor Despite Her Diagnosis, Congresswoman Jennifer Wexton Continues Shifting the Narrative Surrounding Rare Diseases
The constituents of Virginia’s 10th district have a tenacious and unwavering advocate in Congress – and she has progressive supranuclear palsy (PSP).I...
Blog
May 03, 2024
Virginia designates May as Progressive Supranuclear Palsy Month of Awareness
The Virginia General Assembly has designated May, in 2024 and in each succeeding year, as Progressive Supranuclear Palsy Month of Awareness in Virgini...
News
April 25, 2024
CurePSP Provides Resources and Education to Clinicians at AAN 2024
Last week the CurePSP team headed to Denver, Colorado for the American Academy of Neurology’s (AAN) Annual Meeting. The AAN Annual Meeting provides a...
News
March 20, 2024
The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk Blends Tradition With Fresh Faces for Renewed Optimism
It was a breezy and pleasant Saturday morning at Mackle Park when the Southwest Florida PSP Support Group and volunteers welcomed attendees for the 21...
News
March 14, 2024
Advancing PSP and CBD Research: CurePSP Announces Latest Pathway and Pipeline Grant Recipients
NEW YORK, March 14, 2024 /PRNewswire/ — CurePSP has awarded its latest Pathway and Pipeline Grants, totaling approximately $400,000. Recipients of the...
News
February 29, 2024
CurePSP Elects Longtime Board and Community Member as Its Board Chair
NEW YORK, Feb. 29, 2024 /PRNewswire/ — CurePSP, the leading research and advocacy nonprofit organization for PSP, CBD and MSA, has elected F. Jac...
News
January 22, 2024
Leading Researchers and Representatives of Alzheimer’s Association, CurePSP and Rainwater Foundation Publish Paper on Outcome of Tau2022
In February 2022, leading international tau experts convened to share selected highlights of the paper, “Novel avenues of tau research,” during Tau 20...
News
January 09, 2024
CurePSP Funds Collaborative Projects Focused on Care of Neurodegenerative Diseases
NEW YORK, Jan. 9, 2024 /PRNewswire/ — CurePSP announced the recipients of their Collaborative Approaches to Resources, Education and Support (CARES) g...
News
January 08, 2024
Amylyx is starting to recruit for a phase III clinical trial
For PSP Patients and Care Partners: Amylyx is starting to recruit for a phase III clinical trial to evaluate the clinical safety, tolerabili...
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December 22, 2023
Amylyx Pharmaceuticals Announces First Participant Dosed in the Global Phase 3 ORION Study of AMX0035 in Progressive Supranuclear Palsy (PSP)
– Largest ever PSP clinical trial will evaluate the efficacy and safety of AMX0035 in adults with PSP compared to placebo– Trial to enroll a...
News
December 15, 2023
U.S. House of Representatives Passes the National Plan to End Parkinson’s Act!
CurePSP is thrilled that HR 2365, originally the National Plan to End Parkinson’s Act and now the Dr. Emmanuel Bilirakis and Honorable Jenni...
News
November 17, 2023
PSP Care Partner Quoted in New York Times Article on Caregiving
A PSP care partner talked about her experience in a recent New York Times article titled “The Quiet Rage of Caregivers.” Jennifer Levine, whose father...
News
October 12, 2023
CurePSP Presents Two Scientific Posters at 2023 International Movement Disorders Society Congress
By Jessica Shurer, Director of Clinical Affairs and Advocacy at CurePSPMore than 5,000 neurology professionals from 105 countries&...
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October 05, 2023
CurePSP Recognizes Three Prominent Medical Institutions for Their Care for PSP, CBD and MSA
NEW YORK (October 5, 2023) /PRNewswire/ — CurePSP has announced the designation of three new CurePSP Centers of Care, bringing the total to...
News
September 28, 2023
CurePSP Awards Latest Pathway and Pipeline Grants and Urso Student Fellowship Grants Looking to Take Advantage of Recent Neuroscience Breakthroughs
Studies seek to establish an early-stage blood biomarker, explore novel therapies and support the creation of a cohort of PSP and CBD patients in...
News
September 26, 2023
Now Hiring: Associate Director of Clinical Affairs and Advocacy
CurePSP seeks an Associate Director of Clinical Affairs and Advocacy to work as part of the Patient & Care Partner Advocacy Team, reporting to the...
News
September 21, 2023
Parkinson’s Foundation and CurePSP Announce Partnership for Launch of Special Programming for Healthcare Professionals
NEW YORK & MIAMI (September 21, 2023) /PRNewswire/ — The Parkinson’s Foundation today announced the launch of a partnership with&nb...
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September 18, 2023
Congresswoman Jennifer Wexton announces Progressive Supranuclear Palsy (PSP) diagnosis
Today, Congresswoman Wexton announced she has been diagnosed with Progressive Supranuclear Palsy (PSP). This comes after previously sharing...
News
September 06, 2023
CurePSP to Sponsor and Exhibit at INPCS23 With an Eye Towards Strengthening Palliative Care Network
The International Neuropalliative Care Society (INPCS) will be hosting its third annual professional symposium September 12-15. Th...
News
August 17, 2023
For Kathy Cieslak, the CurePSP Quality of Life Respite Grant Provided a Caregiving Companion When She Needed One Most
Kathy Cieslak and her husband, Jim, suspected something was wrong after he suffered the first of several falls while&nbs...
News
August 14, 2023
CurePSP Awards Latest Urso Student Fellowship Grants
CurePSP has awarded its latest round of Urso Student Fellowship grants to students and trainees conducting projects considered pertinent and valuable...
News
August 11, 2023
Share the Care: Jessica Shurer, CurePSP Director of Clinical Affairs and Advocacy, on the Importance of Assisting Families
Dear valued member of the CurePSP community,As you know, building a support system is essential to living the best life possible with progressive supr...
News
May 30, 2023
CurePSP Exhibits for the First Time at the American Academy of Neurology Conference
For neurologists, each spring is marked by the American Academy of Neurology (AAN) annual conference. Neurology professionals from across the Uni...
News
March 14, 2023
The Unifying Power of Rare Disease: CurePSP Visits Capitol Hill
CurePSP’s Director of Clinical Affairs and Advocacy, Jessica Shurer, attended Rare Disease Week on Capitol Hill during the week of February 28 — March...
News
February 21, 2023
Share the Care: Joanna Teters, CurePSP Support Programs Manager, on the Powerful Impact of the Quality of Life Respite Grant
As you likely know, it is equally important to address the well-being of both the person diagnosed with a neurological diagnosis and their family care...
News
February 14, 2023
CurePSP Strengthens Team with Director of Development and Associate Director of Scientific Affairs and Partnerships
NEW YORK, Feb. 14, 2023 /PRNewswire/ — CurePSP, a leading not-for-profit organization dedicated to advancing patient support and treatments of rare ne...
News
February 02, 2023
Rich Spain Feels Right at Home as the Inaugural Director of Development
Rich Spain uses the adage, “you don’t know what you don’t know” to describe his father’s PSP diagnosis. Rich does know his parents well, and as an onl...
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