Latest News & Blogs from The Foundation

October 31, 2024

CurePSP Hosts First In-Person Centers of Care Meeting, Advancing Collaborative Momentum in PSP, CBD and MSA Care

The energy and teamwork behind the CurePSP Centers of Care was palpable in Philadelphia, PA as CurePSP hosted the network’s first in-person meeting on...

News

October 22, 2024

Advancing Communication: The Latest in Assistive Speech Technology

Representative Jennifer Wexton delivering what is believed to be the first speech on the House floor ever given via a voice cloned by artificial intel...

Blog

September 18, 2024

New Scientific Paper from CurePSP and Centers of Care Seeks to Accelerate Early Diagnosis for Atypical Parkinsonian Disorders

The longer a diagnosis of PSP, CBD or MSA takes, the less time someone has to formulate a care plan, build a medical team or enroll in a potential cli...

News

September 10, 2024

CurePSP Receives $200,000 Contribution from the Rainwater Charitable Foundation in Partnership to Support Grant Program for Early-Career Scientists

NEW YORK, Sept. 10, 2024 /PRNewswire/ -- CurePSP is pleased to announce receipt of a $200,000 contribution from the Rainwater Charitable Foundation (R...

News

August 22, 2024

CurePSP Announces Growth of Care Network for Progressive Supranuclear Palsy and Related Diseases

NEW YORK, August 22, 2024 /PRNewswire/ — CurePSP has designated Barrow Neurological Institute, Cedars-Sinai Medical Center, the University of British...

News

August 09, 2024

CurePSP Launches The Collective Mind Podcast to Share the Latest in Advocacy, Care and Research

CurePSP is launching “The Collective Mind,” a new podcast that will share the experiences of experts from across the CurePSP network to educate and up...

News

August 08, 2024

CurePSP Awards a Record Number of Student Fellowship Grants, Promoting Student Interest in the Field

NEW YORK, August 8, 2024 /PRNewswire/ — CurePSP has announced a record number of student fellowship recipients, totaling ten projects between the Urso...

News

August 06, 2024

Canter Family’s Carol’s Research Challenge Raises $134,646 to Fuel Innovative Tauopathy Research

NEW YORK, August 6, 2024 /PRNewswire/ -- The Canter Family is proud to announce that they have raised $134,646 through their 2023 event, Carol’s...

News

July 25, 2024

Neuro2024 Looks to Build on Toronto’s Rich History of PSP Research

Sixty years ago in Toronto, progressive supranuclear palsy (PSP) was first described as a distinct syndrome by three scientists: John Steele, J Cliffo...

Blog

July 19, 2024

CurePSP Awards Record Number of Urso Student Fellowship Grants to Projects Answering Urgent Questions Around Tauopathies

CurePSP awarded a record number of Urso Student Fellowship Grants to students and trainees conducting projects that hope to answer questions in the pr...

News

July 17, 2024

The Foundation for the National Institutes of Health Announces Research Effort to Speed Parkinson’s Diagnosis and Enable Earlier Intervention

The Accelerating Medicines Partnership® in Parkinson’s Disease and Related Disorders (AMP® PDRD) will expedite identification of biomarkers to better...

News

July 15, 2024

CurePSP Awards the First Jim Atwood Neuroscience Student Fellowship Grants, Continuing Jim Atwood’s Love for Undergraduate Research

CurePSP has announced the recipients of the inaugural Jim Atwood Neuroscience Student Fellowship dedicated to projects that will uncover mysteries rel...

News

July 12, 2024

Congresswoman Jennifer Wexton Unveils AI-Generated Voice, Inspiring New Possibilities for PSP Community

Rep. Jennifer Wexton cried happy tears when she first heard her new — old — AI voice. She unveiled the new technology on Wednesday through a post on t...

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July 10, 2024

The Rainwater Charitable Foundation, CurePSP and Aging Mind Foundation Announce $2 Million in Grants to Fund Innovative Research Projects from the Tauopathy Challenge Workshop

FORT WORTH, Texas, July 10 /PRNewswire/ -- The Rainwater Charitable Foundation (RCF), one of the largest independent funders of primary tauopathy rese...

News

July 02, 2024

Now Hiring: Marketing Manager

CurePSP seeks a Marketing Manager to work as part of the Marketing and Communications Team, reporting to the Director of Marketing and Communications....

Blog

June 07, 2024

CurePSP and Congresswoman Jennifer Wexton Advocate for Rare Diseases at Brain and Environment Symposium

The CurePSP team attended the Brain and Environment Symposium in Washington DC on May 20, exploring the impact of environmental toxins on brain h...

News

June 04, 2024

CurePSP and Congresswoman Wexton collaborate on congressional briefing on progressive supranuclear palsy

NEW YORK, June 4, 2024 /PRNewswire/ – CurePSP was on Capitol Hill on May 21 for a briefing focused on progressive supranuclear palsy (PSP). Often init...

News

May 24, 2024

Breaking News: The National Plan to End Parkinson’s Act Passes the Senate, Moves to the White House

The U.S. Senate unanimously passed the “Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act” yesterday, the firs...

News

May 24, 2024

Congress Rallies Around Colleague Jennifer Wexton as She Leads 100 Members in Bipartisan Resolution to Recognize May as PSP Awareness Month

Congresswoman Jennifer Wexton does not want sympathy. She wants the public to learn more about progressive supranuclear palsy (PSP), the disease affec...

News

May 23, 2024

Wexton Leads 100 Members in Bipartisan Resolution to Recognize May as PSP Awareness Month

Washington, DC – May 23, 2024 – Today, Congresswoman Jennifer Wexton (D-VA) introduced a bipartisan resolution to officially recognize May a...

News

May 22, 2024

Join Congresswoman Jennifer Wexton's Digital Day of Action for Month of Awareness!

CurePSP is joining forces with Congresswoman Jennifer Wexton and her team to spread awareness at a federal level for Month of Awareness! To continue b...

Blog

May 10, 2024

Introducing a Bill to the House Floor Despite Her Diagnosis, Congresswoman Jennifer Wexton Continues Shifting the Narrative Surrounding Rare Diseases

The constituents of Virginia’s 10th district have a tenacious and unwavering advocate in Congress – and she has progressive supranuclear palsy (PSP).I...

Blog

May 03, 2024

Virginia designates May as Progressive Supranuclear Palsy Month of Awareness

The Virginia General Assembly has designated May, in 2024 and in each succeeding year, as Progressive Supranuclear Palsy Month of Awareness in Virgini...

News

April 25, 2024

CurePSP Provides Resources and Education to Clinicians at AAN 2024

Last week the CurePSP team headed to Denver, Colorado for the American Academy of Neurology’s (AAN) Annual Meeting. The AAN Annual Meeting provides a...

News

March 20, 2024

The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk Blends Tradition With Fresh Faces for Renewed Optimism

It was a breezy and pleasant Saturday morning at Mackle Park when the Southwest Florida PSP Support Group and volunteers welcomed attendees for the 21...

News

March 14, 2024

Advancing PSP and CBD Research: CurePSP Announces Latest Pathway and Pipeline Grant Recipients

NEW YORK, March 14, 2024 /PRNewswire/ — CurePSP has awarded its latest Pathway and Pipeline Grants, totaling approximately $400,000. Recipients of the...

News

February 29, 2024

CurePSP Elects Longtime Board and Community Member as Its Board Chair

NEW YORK, Feb. 29, 2024 /PRNewswire/ — CurePSP, the leading research and advocacy nonprofit organization for PSP, CBD and MSA, has elected F. Jac...

News

January 22, 2024

Leading Researchers and Representatives of Alzheimer’s Association, CurePSP and Rainwater Foundation Publish Paper on Outcome of Tau2022

In February 2022, leading international tau experts convened to share selected highlights of the paper, “Novel avenues of tau research,” during Tau 20...

News

January 09, 2024

CurePSP Funds Collaborative Projects Focused on Care of Neurodegenerative Diseases

NEW YORK, Jan. 9, 2024 /PRNewswire/ — CurePSP announced the recipients of their Collaborative Approaches to Resources, Education and Support (CARES) g...

News

January 08, 2024

Amylyx is starting to recruit for a phase III clinical trial

For PSP Patients and Care Partners: Amylyx is starting to recruit for a phase III clinical trial to evaluate the clinical safety, tolerabili...

News

December 22, 2023

Amylyx Pharmaceuticals Announces First Participant Dosed in the Global Phase 3 ORION Study of AMX0035 in Progressive Supranuclear Palsy (PSP)

– Largest ever PSP clinical trial will evaluate the efficacy and safety of AMX0035 in adults with PSP compared to placebo– Trial to enroll a...

News

December 15, 2023

U.S. House of Representatives Passes the National Plan to End Parkinson’s Act!

CurePSP is thrilled that HR 2365, originally the National Plan to End Parkinson’s Act and now the Dr. Emmanuel Bilirakis and Honorable Jenni...

News

November 17, 2023

PSP Care Partner Quoted in New York Times Article on Caregiving

A PSP care partner talked about her experience in a recent New York Times article titled “The Quiet Rage of Caregivers.” Jennifer Levine, whose father...

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October 12, 2023

CurePSP Presents Two Scientific Posters at 2023 International Movement Disorders Society Congress

By Jessica Shurer, Director of Clinical Affairs and Advocacy at CurePSPMore than 5,000 neurology professionals from 105 countries&...

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October 05, 2023

CurePSP Recognizes Three Prominent Medical Institutions for Their Care for PSP, CBD and MSA

NEW YORK (October 5, 2023) /PRNewswire/ — CurePSP has announced the designation of three new CurePSP Centers of Care, bringing the total to...

News

September 28, 2023

CurePSP Awards Latest Pathway and Pipeline Grants and Urso Student Fellowship Grants Looking to Take Advantage of Recent Neuroscience Breakthroughs

Studies seek to establish an early-stage blood biomarker, explore novel therapies and support the creation of a cohort of PSP and CBD patients in...

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September 26, 2023

Now Hiring: Associate Director of Clinical Affairs and Advocacy

CurePSP seeks an Associate Director of Clinical Affairs and Advocacy to work as part of the Patient & Care Partner Advocacy Team, reporting to the...

News

September 21, 2023

Parkinson’s Foundation and CurePSP Announce Partnership for Launch of Special Programming for Healthcare Professionals

NEW YORK & MIAMI (September 21, 2023) /PRNewswire/ — The Parkinson’s Foundation today announced the launch of a partnership with&nb...

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September 18, 2023

Congresswoman Jennifer Wexton announces Progressive Supranuclear Palsy (PSP) diagnosis

Today, Congresswoman Wexton announced she has been diagnosed with Progressive Supranuclear Palsy (PSP). This comes after previously sharing...

News

September 06, 2023

CurePSP to Sponsor and Exhibit at INPCS23 With an Eye Towards Strengthening Palliative Care Network

The International Neuropalliative Care Society (INPCS) will be hosting its third annual professional symposium September 12-15. Th...

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August 17, 2023

For Kathy Cieslak, the CurePSP Quality of Life Respite Grant Provided a Caregiving Companion When She Needed One Most

Kathy Cieslak and her husband, Jim, suspected something was wrong after he suffered the first of several falls while&nbs...

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August 14, 2023

CurePSP Awards Latest Urso Student Fellowship Grants

CurePSP has awarded its latest round of Urso Student Fellowship grants to students and trainees conducting projects considered pertinent and valuable...

News

August 11, 2023

Share the Care: Jessica Shurer, CurePSP Director of Clinical Affairs and Advocacy, on the Importance of Assisting Families

Dear valued member of the CurePSP community,As you know, building a support system is essential to living the best life possible with progressive supr...

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May 30, 2023

CurePSP Exhibits for the First Time at the American Academy of Neurology Conference

For neurologists, each spring is marked by the American Academy of Neurology (AAN) annual conference. Neurology professionals from across the Uni...

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March 14, 2023

The Unifying Power of Rare Disease: CurePSP Visits Capitol Hill

CurePSP’s Director of Clinical Affairs and Advocacy, Jessica Shurer, attended Rare Disease Week on Capitol Hill during the week of February 28 — March...

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February 21, 2023

Share the Care: Joanna Teters, CurePSP Support Programs Manager, on the Powerful Impact of the Quality of Life Respite Grant

As you likely know, it is equally important to address the well-being of both the person diagnosed with a neurological diagnosis and their family care...

News

February 14, 2023

CurePSP Strengthens Team with Director of Development and Associate Director of Scientific Affairs and Partnerships

NEW YORK, Feb. 14, 2023 /PRNewswire/ — CurePSP, a leading not-for-profit organization dedicated to advancing patient support and treatments of rare ne...

News

February 02, 2023

Rich Spain Feels Right at Home as the Inaugural Director of Development

Rich Spain uses the adage, “you don’t know what you don’t know” to describe his father’s PSP diagnosis. Rich does know his parents well, and as an onl...

News