Latest News & Blogs from The Foundation
January 31, 2023
CurePSP extends its partnership with the Rainwater Charitable Foundation to accelerate the development of neuroimaging human biomarkers for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and other primary tauopathies
NEW YORK, Jan. 31, 2023 /PRNewswire/ — CurePSP has awarded a $90,000 grant for the pre-clinical and clinical development of a high-affinity...
News
January 20, 2023
CurePSP launches a new annual grant program to promote collaboration and advance clinical care research
NEW YORK, Jan. 20, 2023 /PRNewswire/ — CurePSP has announced the recipients of the first Collaborative Approaches to Resources, Educati...
News
November 17, 2022
CurePSP Expands Specialized Care Network for Rare Neurodegenerative Diseases
NEW YORK (November 17, 2022) /PRNewswire/ — CurePSP has announced the designation of Queen’s Parkinson’s and Movement Disorders Center in Hawaii...
News
November 02, 2022
CurePSP is hiring! Join us in our mission!
Professional OpportunityDirector / Associate Director of Scientific Affairs and PartnershipsDOWNLOAD JOB DESCRIPTION HEREThe Opportunity:CurePSP seeks...
News
November 02, 2022
Judy Coughlin, Wife of Former NFL Coach Tom Coughlin, Dies at 77
Judy Coughlin, the wife of ex-NFL head coach and executive Tom Coughlin, died Wednesday at the age of 77 after a lengthy battle with progressive supra...
News
September 30, 2022
Lecanemab for Alzheimer’s: “Proof of Principle” for PSP, CBD and MSA
By Lawrence I. Golbe, MD, Chief Clinical Officer and Scientific Advisory Board Chair, CurePSPGreat news for people with Alzheimer’s disease: A monoclo...
News
September 27, 2022
Doing it for John: Bonelli Music Bash Returns for a Seventh Straight Year
Lois Bonelli never has to worry if enough people will attend her event. As she prepares for the 7th Annual Bonelli Music Bash to honor her late...
News
September 22, 2022
CurePSP Joins the Unified Parkinson’s Advocacy Council
CurePSP is excited to announce that we have joined the Unified Parkinson’s Advocacy Council (UPAC)! UPAC was created by the Michael J. Fox F...
News
September 19, 2022
The Ream Family Marches Past Their Goals
When Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP) in the fall of 2019 her family — husband Roger and daughters Alanna, Kelly,...
News
August 23, 2022
CurePSP Summer Newsletter Out Now
The latest CurePSP Connection newsletter gives an update from Dr. Kristophe Diaz on the allocation of your funds, a Q&A with Centers of Care...
News
August 10, 2022
For Carepartners, No Moment is More Important Than the Present
When Rafi Stern was a kid, the grass oval in the middle of the Stuyvesant Town apartment village was strictly off-limits. He and his mother, Suzanne W...
News
August 03, 2022
Through the generosity of the Light of Day Foundation, CurePSP has received a matching grant of $50,000!
Every dollar you give towards the Hope Tour will be doubled!DONATE NOWFor more than a decade, CurePSP and the Light of Day Foundation have partnered i...
News
July 22, 2022
Dr. John Steele, Fondly Remembered
By Lawrence I. Golbe, MD Chief Clinical Officer, CurePSPThe PSP community mourns the passing of neurologist John C. Steele, MD on May 21, 2022, surrou...
News
July 18, 2022
Andy Maus Assumes Board Chair Ready for Progress
Andy Maus knows that great systems aren’t built overnight. As the head of the Compass One Healthcare human resources department he oversees human reso...
News
June 29, 2022
Diane Deaver Keeps it Moving Through her Quilts and Poetry
After being released from an emergency room in Alaska, Diane Deaver needed to pick up her Bell’s Palsy medication. She asked her son-in-law to make on...
News
June 13, 2022
The AMULET study: A clinical research study for people living with MSA
To MSA patients and carepartners: at CurePSP, we work hard to follow developments by the pharmaceutical companies around the world that are advancing...
News
May 25, 2022
CurePSP Elects Senior Healthcare Executive as Its Board Chair
Andy Maus will apply his personal and professional experience to advancing the foundation’s mission.NEW YORK, May 25, 2022 — CurePSP, the leadin...
News
May 21, 2022
CurePSP Centers of Care Lean on Each Other to Improve Care of PSP, CBD and MSA
When Dr. Miriam Sklerov first had the idea for a CurePSP Center of Care at the University of North Carolina Medical Center, she didn’t know where to s...
News
April 26, 2022
Ken’s Resilience: A Shared Ride for Hope and Support
When the snow finally melts in St. Alban’s, Vermont, it would take everything to stop Ken Appel from completing his 20-mile bike ride along the Missis...
News
April 18, 2022
Checking in on Previously Funded Venture Grants: Where Are They Now?
CurePSP has always believed in the collaborative nature of research. By combining the work of scientists who have produced compelling research in...
News
April 05, 2022
Marty Rimestad Finds New Ways to Explore the Outdoors
If Marty and Wanda Rimestad could be anywhere, they would probably be perched in the breakfast nook of their old home in the countryside of Amery, Wis...
News
March 21, 2022
Dr. Sally Temple Looks Ahead
Dr. Sally Temple doesn’t have time to feel pressure. For over three decades she has responded to uncertainty with the same remedy: more research. But...
News
March 15, 2022
Marco Island Takes its Biggest Step Towards a Cure Yet
Cindy MacDonald lets out a virtual gasp when I tell her that over 100 people had already registered for the 19th Annual CurePSP Awareness and Memorial...
News
October 21, 2021
CurePSP appoints former UNC Movement Disorders Center coordinator to its top programs position
Jessica Shurer, MSW, LCSWJessica Shurer will head the foundation’s patient and family support and help expand its Centers of Care.NEW YORK, Oct....
News
September 14, 2021
CurePSP funds four new grants to advance treatment of prime of life neurodegeneration
Studies at leading institutions may result in therapeutic approaches for PSP, CBD, FTD, and related diseases.NEW YORK, Sept. 10, 2021 ...
News
August 09, 2021
CurePSP appoints Dr. Kristophe Diaz as the foundation’s chief executive
Kristophe Diaz, PhDA scientist with broad experience in life sciences will lead the organization’s research, programs, and fundraising initiatives.NEW...
News
July 06, 2021
CurePSP’s clinical guide to rare neurodegenerative conditions is published by leading neurology journal
Frontiers in Neurology today published a consensus statement on the best practices in the clinical management of progressive supranuclear palsy (...
News
June 16, 2021
FAQ on FDA Approval of Aducanumab
On June 7, 2021, the FDA approved aducanumab, a monoclonal antibody made by Biogen, for use in Alzheimer’s disease in the US. Here’s...
News
June 03, 2021
VA plans expansion of benefits for disability claims for conditions related to certain toxic exposures
New evaluation process to be applied in identifying future presumptive conditionVA announced today two major decisions related to presumptive co...
News
April 20, 2021
CurePSP awards three new Venture Grants for the study of PSP and CBD
Studies will focus on toxic protein in the brain and genetic factorsCurePSP has awarded Venture Grants to three researchers studying tau protein patho...
News
February 15, 2021
CurePSP and the Rainwater Charitable Foundation partner to support a collaborative biobanking platform for frontotemporal dementia research
Partnership will support efforts to enhance quantity and quality of neuropathologic FTD research worldwideThe Rainwater Charitable Foundation&nbs...
News
December 18, 2020
UCB pauses the development of bepranemab for progressive supranuclear palsy
A note from Kristophe Diaz, PhD, CurePSP Vice President- Scientific AffairsTo our patients, caregivers, supporters, advocates, and volunteers:At CureP...
News
December 15, 2020
Advisory on COVID-19 vaccines and PSP, CBD, and MSA from Lawrence I. Golbe, MD
Advisory on COVID-19 VaccinesFrom Lawrence I. Golbe, MD, Director of Clinical Affairs, CurePSPI am clinical director at CurePSP, a nonprofit based in...
News
August 11, 2020
CurePSP Partners With Rainwater to Support Pioneering Neurodegeneration Research
Study will use ‘miniature brains’ cultivated from stem cells to study protein mutationsTweet thisNEW YORK–(BUSINESS WIRE)–CurePSP has awarded a $100,0...
News
August 10, 2020
Promotus Launched as Global Alliance of PSP and CBD NGO’s
Will be key resource for patient advocacy, research, and clinical trialsTweet thisNEW YORK — Promotus (www.promotus.org) has been launched as a g...
News
June 03, 2020
CurePSP Cancels In-Person Events
From Bill McFarland, Chair, Board of DirectorsOn behalf of the CurePSP, Inc., Board of Directors, I’m writing to let you know that given the...
News
April 14, 2020
Scientific American Article Cites Tau Protein as Linchpin to Finding Neurodegeneration Cure
In a recently published article, “Tau Shows Promise as Achilles’ Heel for Alzheimer’s and Similar Diseases,” the respected journal Scientifi...
News
March 27, 2020
Update Regarding COVID-19 Virus
We at CurePSP recognize that many of you coping with the struggles and challenges that PSP and other neurodegenerative diseases present may be facing...
News
March 10, 2020
CurePSP’s approach during the coronavirus outbreak
To the CurePSP CommunityCurePSP’s approach during the coronavirus outbreakCurePSP’s primary concern during the coronavirus outbreak is the welfare of...
News
March 10, 2020
Advisory on Coronavirus From Lawrence I. Golbe, MD
Advisory on PSP and the CoronavirusFrom Lawrence I. Golbe, MD, Director of Clinical AffairsThose with PSP are at special risk with regard to the coron...
News
December 19, 2019
Biogen Ends Trial of Its Drug for PSP
Our Letter to the PSP Community Regarding Biogen Trial ResultsBy Lawrence I. Golbe, MD, Director of Scientific AffairsThe pharmaceutical company Bioge...
News
September 13, 2019
CurePSP Image Library
Every year we are continuously growing our number of volunteers who are helping spread awareness and hosting fundraisers to support our vital programs...
News
July 29, 2019
AbbVie Ends Tau Antibody Study
AbbVie has ended the clinical trial of its intravenously administered antibody designed to slow the progression of PSP when it failed to show benefit....
News
July 29, 2019
CurePSP Awards Seven New Research Grants
NEW YORK–(July 29, 2019)–CurePSP, the foundation for prime of life neurodegeneration, has awarded grants to scientific research into progressive supra...
News
April 11, 2019
The Mystery of My Brother’s Brain – a personal story
Laurence S. BraudeThis story comes to us from Solna Braude, who shares her brother’s journey in finding a definitive diagnosis for his neurological di...
News
March 28, 2019
CurePSP Names Dr. Lawrence I. Golbe, Eminent Clinician, as Head of Scientific Affairs
He succeeds Dr. Alex Klein, who moves to UCB post in BrusselsDr. Lawrence I. GolbeNEW YORK (February 20, 2019) – CurePSP, the foundation for prime of...
News
October 18, 2018
Mama’s Legacy
This story comes to us from Noha Al-Awadi about her mother and her battle with progressive supranuclear palsy. Tuesday, October 9th, 2018 ma...
News
October 17, 2018
Rush University Medical Center Caregiver Study
Have You Been a Caregiver for Someone with Parkinson’s Disease, PSP, MSA, CBD, or a related disorder?You have learned a lot by caring for your loved o...
News
October 11, 2018
In Conversation with John Burhoe, Sr.
On Friday, October 5, CurePSP Board Director Amy Branch sat down with John Burhoe Sr., CurePSP Chair Emeritus, to discuss his thoughts on the progress...
News
September 27, 2018
FREE Webinar, October 18
Caregivers’ Search for MeaningFor family and professional caregiversby Janet Edmunson, M.Ed.WHEN: Thursday, October 18, 2018 (The webinar also wi...
News