Featured Personal Stories
Each family who has experienced this journey has learned a great deal. Care partners or family members often draw satisfaction by sharing their stories.
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Patricia Richardson
Laurence Richardson, war hero, corporate executive and late-in-life musician, was another tragic victim of PSP. His daughter Patricia Richardson, well-known actress of stage and screen, tells his moving story.
Kathryn Leigh Scott
Geoff Miller, founding editor of Los Angeles Magazine, the first city magazine, and lover of jazz, good beer and the good life, passed away after a battle with PSP. Here his wife, actress and author Kathryn Leigh Scott, tells their story.
Mary Lou Burhoe
Mary Lou Burhoe, wife of CurePSP Board Chair Emeritus John Burhoe, passed away from PSP after almost 45 years of marriage. Here, her husband tells the moving story of their life together and the poignant last years of their patient journey.
Samuel Feldman
Samuel Feldman was an attorney, golfer, husband, and most importantly, a father. Debra Feldman tells the story of her family’s “new normal” after her husband PSP diagnosis and the ways her loved ones worked to stay connected with Samuel during his last years.
Carroll Brent
Suzanne Brent was the first to notice that something was wrong with her father Carroll Brent. Here she tells the story of the difficult journey their family went on, from misdiagnoses to failed treatments, that eventually concluded with PSP.
Mary Richard
Jean-Paul Richard tells his wife Mary’s story and reflects back to figure out when the symptoms of her CBD started. From a change in speech to sudden falls, things that seemed innocuous individually all add up to this diagnosis.
Karen Walker
Karen Walker lived her whole life handling adversity with wit and grace. Her longtime friend Gretchen reflects on their friendship and Karen's resilient spirit.
More Personal Stories
Susan's Story
Read Susan's StoryGeorge Oravits
Read George's StorySandra Nentwig
Read Sandra's StoryAli Clagett
Read Ali's StoryKaren Bordo
Read Karen's StorySandra Magnus
Read Sandra's StoryIlene Veltman
Read Ilene's StoryKen Jennings
Read Ken's StoryEd Chidakel
Read Ed's StoryNancy Tate
Read Nancy's StoryAl Wissink
Read Al's StoryDorothy MacDonald
Read Dorothy's StoryLeslie Riopel
Read Leslie's StoryRita Grabinski
Read Rita's StoryMarlene Knutson
Read Marlene's StoryColette Bednarczyk
Read Colette's StoryAjit Shukla
Read Ajit's StoryLinda Henry
Read Linda's StoryTruman Poole
Read Truman's StoryJackie Myers
Read Jackies StoryBob Pitt
Read Bob's StoryDoug Tannenbaum
Read Doug's StoryBernice Gunderman
Read Bernice's StoryJohn R. Hays
Read John's StoryCaleb Blanton
Read Caleb's StoryShakeela Subramany
Read Shakeela's StoryMillard Bachman
Read Millard's StoryEileen Nixon
Read Eileen's StoryMing Chi
Read Ming's StoryJon Bolstad
Read Jon's StoryHerbert Levin
Read Herbert's StoryGail Butler
Read Gail's StoryPat Adams
Read Pat's StoryGinny Mueller
Read Ginny's StoryRobert Chiappini
Read Robert's StoryRichard Straub
Read Richard's StoryJoin our email list
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