Resources for Healthcare Professionals
CurePSP is committed to providing resources and information to physicians and allied healthcare professionals regarding progressive supranuclear palsy, corticobasal degeneration and multiple system atrophy. Given the rarity of these neurodegenerative diseases, education of the medical community is critical, with the aims of decreasing delay to diagnosing and improving quality of care.
Centers of Care
The CurePSP Center of Care network was established in 2017 with the goal of connecting people diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) to the best possible clinical care to support their disease management and quality of life. Medical centers have been designated a CurePSP Center of Care through eligibility criteria centered around leadership in specialized therapies and treatment options, comprehensive support services and clinical research dedicated to PSP, CBD and MSA. There are currently 31 CurePSP Centers of Care in the United States and 2 in Canada, and CurePSP aims to expand this foundational care network in the coming years.
Brochure Catalogue
CurePSP offers a variety of educational resources to community members and healthcare professionals, available upon request, at no cost. They can be viewed online and printed, or you can request a packet of printed materials to be mailed to you.
Continuing Education
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Announced in a press release in September 2023, CurePSP and the Parkinson’s Foundation (PF) partnered to develop multi-part continuing education programming for healthcare professionals. It is our hope that this joint venture will help to address the issues of misdiagnosis and delays to accessing to the right care for the PF-CurePSP communities.
Target audience – these activities are designed to meet the educational needs of:
- Physicians
- Physician assistants
- Nurses
- Social workers
- Psychologists
- Physical therapists
- Occupational therapists
- Speech-language pathologists
Atypical Parkinsonism Podcast Series
Learning objectives – at the end of the activity, learners will be able to:
- Identify common early symptoms of multiple system atrophy (MSA), progressive supranuclear palsy (PSP) and corticobasal degeneration/syndrome (CBD) and explain the overlaps and differences between the diagnostic process and typical disease progression of atypical Parkinsonian syndromes and Parkinson’s disease.
- Apply interprofessional approaches to symptom management for PSP, CBD and MSA and incorporate the healthcare team in assessing needs and crafting a plan of care for patients with these diseases.
- Recognize the unique challenges of people living with PSP, CBD or MSA and be able to name helpful resources that support the quality of life of patients and family care partners.
Registration and information on continuing education credits are available on the PF Learning Lab
Caring for Your Patients with Atypical Parkinsonism, online course
Learning objectives – at the end of the activity, learners will be able to:
- Recognize the epidemiology, symptoms, pathophysiology and diagnosis process of three atypical Parkinsonian syndromes: Multiple system atrophy (MSA), progressive supranuclear palsy (PSP) and corticobasal degeneration/syndrome (CBD/CBS).
- Discuss current medical treatments and upcoming disease-modifying therapies for MSA, PSP and CBD/CBS.
- Identify five non-pharmacological supportive or therapeutic care modalities that can be used to manage symptoms of atypical Parkinsonism.
- Integrate relevant approaches to improve communication with people with atypical Parkinsonism and their care partners.
- Review the roles and incorporation of different care team members in the interprofessional assessment, treatment and formation of care plan for patients with atypical Parkinsonism.
Registration and information on continuing education credits are available on the PF Learning Lab
This online course was developed with support by CND Life Sciences.
Advanced Team Training on Atypical Parkinsonism
Live, 2-day, in-person training in Minneapolis, MN, October 25-26, 2024. Open to alumni of the PF Team Training for Parkinson’s, whether from a past training or the training offered in Minneapolis, October 22-24, 2024.
Further Resources
Best Practices in the Clinical Management of Progressive Supranuclear Palsy and Corticobasal Syndrome: A Consensus Document of the CurePSP Centers of Care published in Frontiers of Neurology in July 2021
PSP rating scale – a measure of disease progression and disability, for use by clinicians published by CurePSP’s chair of the Scientific Advisory Board, Dr. Lawrence I. Golbe
A Clinician’s Guide to Progressive Supranuclear Palsy published by CurePSP’s chair of Scientific Advisory Board, Dr. Lawrence I. Golbe
People with progressive supranuclear palsy need to be seen sooner and more frequently published by the CurePSP Access to Care working group in the journal Parkinsonism and Related Disorders in October 2023
Video Resources
A collection of videos specifically for physicians that are treating or want to learn how to diagnose and treat a patient with PSP, CBD, MSA, and related brain diseases.