Research
CurePSP recognizes that the fight against PSP, CBD, and other disorders can now take a new direction, capitalizing on a number of recent discoveries, exciting ongoing work, and new hypotheses. Please watch this video to learn more about PSP and CBD research. At Neuro 2021, Adam Boxer, MD, PhD, discusses how to successfully pave a new road towards PSP therapies.
Paving a New Road to PSP Therapies - Adam Boxer, MD, PhD
CurePSP Brain Tissue Donation Program
Brain donations are a precious gift for science, establishing a long-term legacy of scientific progress that otherwise would not be possible. Brain tissue donated through this program is carefully studied by researchers working hard to understand human neurobiology and the causes of neurodegeneration. Brain donations have led, and will lead to breakthroughs in science, the development of treatments and ultimately, cures for PSP, CBD, MSA and related diseases.
CurePSP Genetics Program
The CurePSP Genetics Program is a nationwide initiative to increase our understanding of the genetic causes of PSP, CBS and MSA. The study will collect DNA from the comfort of your home and send the sample to the NIH for genetic testing. If a significant genetic variant is found, you have the option to receive the results from a genetic counselor. All activities are free of charge.
Clinical Trials
Clinical trials help researchers answer important medical questions, providing information that may help with the development of future treatment options. Clinical trials are conducted to determine if investigational treatments (such as new drugs, procedures, or medical devices) are safe and effective, so that the regulatory authority can decide whether they can be approved for use as a treatment.
Learn More About Clinical Trials
The FTD Disorders Registry
The Registry is an online database to collect information from those affected by all types of prime of life brain diseases, such as PSP, CBD, and related. Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. Join the registry here.