Legacy Funds

In Barry’s memory, his family has established the Barry Newburger Neurological Research Fund to support scientific investigation into progressive supranuclear palsy (PSP) and related diseases.

Billy Mitchell is a one-of-a kind extraordinary man. He is always the most charismatic person in the room and yet, deflects that bright light to shine on others. He is loved and admired beyond words.

The Carol J. Major Legacy Fund was established by her brother, George Grice, in loving memory of Carol, who was a kind, generous, and loving soul, touching the lives of everyone she met.

Initiated by Lawrence Levien, in loving memory of Cherie Levien, the Cherie Levien Quality of Life Fund aims to alleviate the financial burden of caring for a prime of life brain disease sufferer.

Colette taught me that it is my choice if I choose to live life. She never blamed or became the victim. I will always remember her wonderful sense of humor. Gifts will directly support the Colette Bednarczyk Family Respite Endowment, which provides in-home professional aid to families who otherwise couldn't afford it. 

Roy West was a former mayor of Richmond, city councilman and Richmond Public School principal. Every inch of the city of Richmond is a daily reminder of him.

The Hemang N. Bhatt Legacy Fund was established by his youngest daughter, Mana Bhatt Sanghvi, to deliver a commitment she made to her beloved Dad in their final Christmas together: to invest in progress towards finding a cure for PSP. With this fund, Hemang’s family honors him by extending the impact he had on so many throughout his lifetime.

Kim and Dan Heins first met in Sunday School at a small Baptist church in Louisville, Kentucky. They fell head over heels in love with each other and married there 18 months later.

Born in India. Made In America. Fearless entrepreneur. Father, husband, brother, mentor, friend, confidant. One more chapter – a legacy in patient-centric research initiative with CurePSP and the Mayo Clinic in Jacksonville – can still be written.

The Braude Foundation has been donating funds to CurePSP to help patients with harvesting brains and to motivate patients to donate their brains so that patients can have closure for their loved ones.

Linda Ann Phillips was remarkable for her quiet strength and determination. Her legacy and memory will live on through her family and friends. They continue to remember her famous dinner parties, her lavish Christmas decorations, her hospitality at her condo in Marathon or her world trips with her husband Jack. 

The Linda Ferguson Legacy Fund was created in her memory by her family, so that the life of this exceptional woman, her loyalty, and her integrity live on.

Lying on warm beaches, drinks and dinners with friends and family, dancing at parties, listening to Bruce Springsteen (live whenever possible) and hanging out with longtime Brooklyn girlfriends were some of Margaret's favorite things to do.

The Mary Jane Semcer Research Legacy Fund is dedicated to helping cure PSP and hopes you will help support this important research initiative.

The Mary Jo Meagher Legacy Fund was established by her daughter, Mary Therese, so that the life of this amazing wife and mother, who truly embraced life, is never forgotten.

In honor of our beloved wife, mother, grandmother, great grandmother and sister-in-law, Natalie L. Friedman, our family has established this legacy fund to raise awareness of PSP and to help find a cure for this crippling disease.

Dedicated to helping patients, families, and carepartners, educating and creating awareness, and funding research into a cure. It honors Stephen N. Jasperson and his father, Newell Jasperson.

Nikki Lanza O'Malley had a diligent and methodical mind, keeping tabs of everyone who mattered to her — most importantly her family.

Pankajam Nalluswami was a pioneer. Her love, discipline, education, humor, and courage would eventually be her foundation for managing her PSP diagnosis and care needs, while still partnering with her husband who became her primary caregiver during the first part of her illness.

The Pauline Cisneros Polette Legacy Fund was created in her memory by her family, so that the life of this amazing doctor, who touched so many people personally and professionally, is never forgotten.

The Stephen Goldman Legacy Fund has been established to honor his commitment to CurePSP. He was active on numerous CurePSP committees focused on research, patient and caregiver support, and raising awareness of the tragedy of PSP.