Latest News & Blogs from The Foundation
September 06, 2023
CurePSP to Sponsor and Exhibit at INPCS23 With an Eye Towards Strengthening Palliative Care Network
The International Neuropalliative Care Society (INPCS) will be hosting its third annual professional symposium September 12-15. Th...
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August 17, 2023
For Kathy Cieslak, the CurePSP Quality of Life Respite Grant Provided a Caregiving Companion When She Needed One Most
Kathy Cieslak and her husband, Jim, suspected something was wrong after he suffered the first of several falls while&nbs...
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August 14, 2023
CurePSP Awards Latest Urso Student Fellowship Grants
CurePSP has awarded its latest round of Urso Student Fellowship grants to students and trainees conducting projects considered pertinent and valuable...
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August 11, 2023
Share the Care: Jessica Shurer, CurePSP Director of Clinical Affairs and Advocacy, on the Importance of Assisting Families
Dear valued member of the CurePSP community,As you know, building a support system is essential to living the best life possible with progressive supr...
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May 30, 2023
CurePSP Exhibits for the First Time at the American Academy of Neurology Conference
For neurologists, each spring is marked by the American Academy of Neurology (AAN) annual conference. Neurology professionals from across the Uni...
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March 14, 2023
The Unifying Power of Rare Disease: CurePSP Visits Capitol Hill
CurePSP’s Director of Clinical Affairs and Advocacy, Jessica Shurer, attended Rare Disease Week on Capitol Hill during the week of February 28 — March...
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February 21, 2023
Share the Care: Joanna Teters, CurePSP Support Programs Manager, on the Powerful Impact of the Quality of Life Respite Grant
As you likely know, it is equally important to address the well-being of both the person diagnosed with a neurological diagnosis and their family care...
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February 14, 2023
CurePSP Strengthens Team with Director of Development and Associate Director of Scientific Affairs and Partnerships
NEW YORK, Feb. 14, 2023 /PRNewswire/ — CurePSP, a leading not-for-profit organization dedicated to advancing patient support and treatments of rare ne...
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February 02, 2023
Rich Spain Feels Right at Home as the Inaugural Director of Development
Rich Spain uses the adage, “you don’t know what you don’t know” to describe his father’s PSP diagnosis. Rich does know his parents well, and as an onl...
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January 31, 2023
CurePSP extends its partnership with the Rainwater Charitable Foundation to accelerate the development of neuroimaging human biomarkers for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and other primary tauopathies
NEW YORK, Jan. 31, 2023 /PRNewswire/ — CurePSP has awarded a $90,000 grant for the pre-clinical and clinical development of a high-affinity...
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January 20, 2023
CurePSP launches a new annual grant program to promote collaboration and advance clinical care research
NEW YORK, Jan. 20, 2023 /PRNewswire/ — CurePSP has announced the recipients of the first Collaborative Approaches to Resources, Educati...
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November 17, 2022
CurePSP Expands Specialized Care Network for Rare Neurodegenerative Diseases
NEW YORK (November 17, 2022) /PRNewswire/ — CurePSP has announced the designation of Queen’s Parkinson’s and Movement Disorders Center in Hawaii...
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November 02, 2022
CurePSP is hiring! Join us in our mission!
Professional OpportunityDirector / Associate Director of Scientific Affairs and PartnershipsDOWNLOAD JOB DESCRIPTION HEREThe Opportunity:CurePSP seeks...
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November 02, 2022
Judy Coughlin, Wife of Former NFL Coach Tom Coughlin, Dies at 77
Judy Coughlin, the wife of ex-NFL head coach and executive Tom Coughlin, died Wednesday at the age of 77 after a lengthy battle with progressive supra...
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September 30, 2022
Lecanemab for Alzheimer’s: “Proof of Principle” for PSP, CBD and MSA
By Lawrence I. Golbe, MD, Chief Clinical Officer and Scientific Advisory Board Chair, CurePSPGreat news for people with Alzheimer’s disease: A monoclo...
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September 27, 2022
Doing it for John: Bonelli Music Bash Returns for a Seventh Straight Year
Lois Bonelli never has to worry if enough people will attend her event. As she prepares for the 7th Annual Bonelli Music Bash to honor her late...
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September 22, 2022
CurePSP Joins the Unified Parkinson’s Advocacy Council
CurePSP is excited to announce that we have joined the Unified Parkinson’s Advocacy Council (UPAC)! UPAC was created by the Michael J. Fox F...
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September 19, 2022
The Ream Family Marches Past Their Goals
When Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP) in the fall of 2019 her family — husband Roger and daughters Alanna, Kelly,...
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August 23, 2022
CurePSP Summer Newsletter Out Now
The latest CurePSP Connection newsletter gives an update from Dr. Kristophe Diaz on the allocation of your funds, a Q&A with Centers of Care...
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August 10, 2022
For Carepartners, No Moment is More Important Than the Present
When Rafi Stern was a kid, the grass oval in the middle of the Stuyvesant Town apartment village was strictly off-limits. He and his mother, Suzanne W...
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August 03, 2022
Through the generosity of the Light of Day Foundation, CurePSP has received a matching grant of $50,000!
Every dollar you give towards the Hope Tour will be doubled!DONATE NOWFor more than a decade, CurePSP and the Light of Day Foundation have partnered i...
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July 22, 2022
Dr. John Steele, Fondly Remembered
By Lawrence I. Golbe, MD Chief Clinical Officer, CurePSPThe PSP community mourns the passing of neurologist John C. Steele, MD on May 21, 2022, surrou...
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July 18, 2022
Andy Maus Assumes Board Chair Ready for Progress
Andy Maus knows that great systems aren’t built overnight. As the head of the Compass One Healthcare human resources department he oversees human reso...
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June 29, 2022
Diane Deaver Keeps it Moving Through her Quilts and Poetry
After being released from an emergency room in Alaska, Diane Deaver needed to pick up her Bell’s Palsy medication. She asked her son-in-law to make on...
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June 13, 2022
The AMULET study: A clinical research study for people living with MSA
To MSA patients and carepartners: at CurePSP, we work hard to follow developments by the pharmaceutical companies around the world that are advancing...
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May 25, 2022
CurePSP Elects Senior Healthcare Executive as Its Board Chair
Andy Maus will apply his personal and professional experience to advancing the foundation’s mission.NEW YORK, May 25, 2022 — CurePSP, the leadin...
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May 21, 2022
CurePSP Centers of Care Lean on Each Other to Improve Care of PSP, CBD and MSA
When Dr. Miriam Sklerov first had the idea for a CurePSP Center of Care at the University of North Carolina Medical Center, she didn’t know where to s...
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April 26, 2022
Ken’s Resilience: A Shared Ride for Hope and Support
When the snow finally melts in St. Alban’s, Vermont, it would take everything to stop Ken Appel from completing his 20-mile bike ride along the Missis...
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April 18, 2022
Checking in on Previously Funded Venture Grants: Where Are They Now?
CurePSP has always believed in the collaborative nature of research. By combining the work of scientists who have produced compelling research in...
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April 05, 2022
Marty Rimestad Finds New Ways to Explore the Outdoors
If Marty and Wanda Rimestad could be anywhere, they would probably be perched in the breakfast nook of their old home in the countryside of Amery, Wis...
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March 21, 2022
Dr. Sally Temple Looks Ahead
Dr. Sally Temple doesn’t have time to feel pressure. For over three decades she has responded to uncertainty with the same remedy: more research. But...
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March 15, 2022
Marco Island Takes its Biggest Step Towards a Cure Yet
Cindy MacDonald lets out a virtual gasp when I tell her that over 100 people had already registered for the 19th Annual CurePSP Awareness and Memorial...
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October 21, 2021
CurePSP appoints former UNC Movement Disorders Center coordinator to its top programs position
Jessica Shurer, MSW, LCSWJessica Shurer will head the foundation’s patient and family support and help expand its Centers of Care.NEW YORK, Oct....
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September 14, 2021
CurePSP funds four new grants to advance treatment of prime of life neurodegeneration
Studies at leading institutions may result in therapeutic approaches for PSP, CBD, FTD, and related diseases.NEW YORK, Sept. 10, 2021 ...
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August 09, 2021
CurePSP appoints Dr. Kristophe Diaz as the foundation’s chief executive
Kristophe Diaz, PhDA scientist with broad experience in life sciences will lead the organization’s research, programs, and fundraising initiatives.NEW...
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July 06, 2021
CurePSP’s clinical guide to rare neurodegenerative conditions is published by leading neurology journal
Frontiers in Neurology today published a consensus statement on the best practices in the clinical management of progressive supranuclear palsy (...
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June 16, 2021
FAQ on FDA Approval of Aducanumab
On June 7, 2021, the FDA approved aducanumab, a monoclonal antibody made by Biogen, for use in Alzheimer’s disease in the US. Here’s...
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June 03, 2021
VA plans expansion of benefits for disability claims for conditions related to certain toxic exposures
New evaluation process to be applied in identifying future presumptive conditionVA announced today two major decisions related to presumptive co...
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April 20, 2021
CurePSP awards three new Venture Grants for the study of PSP and CBD
Studies will focus on toxic protein in the brain and genetic factorsCurePSP has awarded Venture Grants to three researchers studying tau protein patho...
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February 15, 2021
CurePSP and the Rainwater Charitable Foundation partner to support a collaborative biobanking platform for frontotemporal dementia research
Partnership will support efforts to enhance quantity and quality of neuropathologic FTD research worldwideThe Rainwater Charitable Foundation&nbs...
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December 18, 2020
UCB pauses the development of bepranemab for progressive supranuclear palsy
A note from Kristophe Diaz, PhD, CurePSP Vice President- Scientific AffairsTo our patients, caregivers, supporters, advocates, and volunteers:At CureP...
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December 15, 2020
Advisory on COVID-19 vaccines and PSP, CBD, and MSA from Lawrence I. Golbe, MD
Advisory on COVID-19 VaccinesFrom Lawrence I. Golbe, MD, Director of Clinical Affairs, CurePSPI am clinical director at CurePSP, a nonprofit based in...
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August 11, 2020
CurePSP Partners With Rainwater to Support Pioneering Neurodegeneration Research
Study will use ‘miniature brains’ cultivated from stem cells to study protein mutationsTweet thisNEW YORK–(BUSINESS WIRE)–CurePSP has awarded a $100,0...
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August 10, 2020
Promotus Launched as Global Alliance of PSP and CBD NGO’s
Will be key resource for patient advocacy, research, and clinical trialsTweet thisNEW YORK — Promotus (www.promotus.org) has been launched as a g...
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June 03, 2020
CurePSP Cancels In-Person Events
From Bill McFarland, Chair, Board of DirectorsOn behalf of the CurePSP, Inc., Board of Directors, I’m writing to let you know that given the...
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April 14, 2020
Scientific American Article Cites Tau Protein as Linchpin to Finding Neurodegeneration Cure
In a recently published article, “Tau Shows Promise as Achilles’ Heel for Alzheimer’s and Similar Diseases,” the respected journal Scientifi...
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March 27, 2020
Update Regarding COVID-19 Virus
We at CurePSP recognize that many of you coping with the struggles and challenges that PSP and other neurodegenerative diseases present may be facing...
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March 10, 2020
Advisory on Coronavirus From Lawrence I. Golbe, MD
Advisory on PSP and the CoronavirusFrom Lawrence I. Golbe, MD, Director of Clinical AffairsThose with PSP are at special risk with regard to the coron...
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March 10, 2020
CurePSP’s approach during the coronavirus outbreak
To the CurePSP CommunityCurePSP’s approach during the coronavirus outbreakCurePSP’s primary concern during the coronavirus outbreak is the welfare of...
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December 19, 2019
Biogen Ends Trial of Its Drug for PSP
Our Letter to the PSP Community Regarding Biogen Trial ResultsBy Lawrence I. Golbe, MD, Director of Scientific AffairsThe pharmaceutical company Bioge...
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