Latest News from The Foundation
June 01, 2017
Light Of Day Grant CurePSP $80,000
David Kemp, CurePSP President, with Tony Pallagrosi, Light of Day Executive Director, presenting the matching grant.Early in 2017, Tony Pallagrosi con...
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May 31, 2017
Update from John Royer, PSP Correspondent
This is article six from John Royer, a man living as humorously as possible with PSP.It’s the middle of May and I feel better and I haven’t fallen onc...
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May 25, 2017
New Criteria For PSP Diagnosis
New Diagnosis Criteria Established for PSP.In a groundbreaking development, an international collaboration of neurologists and movement disorder speci...
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May 23, 2017
Update from John Royer, PSP Correspondent
This is article five from John Royer, a man living as humorously as possible with PSP. It is a day that is not so good for me. My mood is glum.I...
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May 05, 2017
Update from John Royer, PSP Correspondent
This is article four from John Royer, a man living as humorously as possible with PSP. I thank the physical therapist that I have, namely Ryan Ma...
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May 02, 2017
CurePSP Venture Grant Goes to Dr. John Steele.
Dr. John SteeleDr. John W. Steele has been awarded a CurePSP Venture Grant for a study titled “iCRISPRi in Human neurons and Glia to Elucidate Selecti...
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May 02, 2017
Dr Troche Awarded a CurePSP Venture Grant
Dr. Michelle TrocheMichelle S. Troche, PhD/CCC-SLP, has been awarded a CurePSP Venture Grant for her research project titled “Developing Treatmen...
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April 24, 2017
John Royer, thoughts of a PSP patient
This is the third installment from John Royer, our correspondent with PSP. See his first article here.See his second article here. You...
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April 14, 2017
An Update From John, a PSP patient.
A short while ago we received a letter from John Royer, a man living with PSP, and we placed it on our blog. We suggested we could post mor...
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April 06, 2017
A message from John, who has PSP.
This beautiful article was sent to us by one of our community, John Royer, who has PSP. Thank you John, for sharing these words. Auth...
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April 04, 2017
Why Advocacy is Vital
Trish Caruana, Vice President – Patient and Carepartner AdvocacyIn this article, Trish Caruana, Vice President – Patient and Carepartner Adv...
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March 23, 2017
$80,000 Matching Grant from the Light of Day Foundation!
IMPORTANT UPDATE!As of Wednesday, April 12, the CurePSP community had raised over $60,000! That puts us on track to beat all records for m...
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January 27, 2017
Breakthrough in clearing toxic misfolded tau, in the Daily-Star, Jan 26
With $100 million from Rainwater family, brain research hits strideBY STEVE KASKOVICH, Star-Telegram, January 26More tha...
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January 26, 2017
Anti-Tau Antibody Trial Enters Phase 2!
AbbVie Initiates Phase 2 Clinical Trial Programs for ABBV-8E12, an Investigational Anti-Tau Antibody, in Early Alzheimer’s Disease and Progressive Sup...
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January 12, 2017
A children’s book, explaining PSP and other disorders.
One of our community,Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taki...
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January 10, 2017
An article by one of our community
One of the CurePSP community has written this beautiful article on the intricacies of finding love again. Article by Joanna McFarland Owusu.Poste...
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December 14, 2016
13-Year-Old Abby Sayre Starts CBD Fundraiser In Memory Of Grandmother Mary Kay
Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow.Mary Kay was diagnosed with Corticobasal Degeneration (CBD). C...
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December 14, 2016
President Obama Signs 21st Century Cures Act
It is official! The 21st Century Cures Act has been signed into law by President Barack Obama. “We’re tackling cancer, brain disease,...
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December 12, 2016
NINDS/NIH/NIA Funding Opportunity Announcement
NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application in...
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December 05, 2016
CurePSP receives $200,000 from Nesbitt Charitable Foundation to fund two studies.
CurePSP donor funds two innovative studies of PSPNesbitt grant supports research into both care and cure Sarah Boone NesbittNew York, NY (Novembe...
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November 29, 2016
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients
Ask a Doctor: Dr. Brent Bluett on PSPby Sylvia Rupani-SmithVery few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP,...
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November 11, 2016
2016 CurePSP International Research Symposium
2016 CurePSP International Research Symposium October 27, Jersey City, NJ — Sta...
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November 11, 2016
2016 CurePSP International Research Symposium
2016 CurePSP International Research Symposium October 27, Jersey City, NJ — Sta...
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October 21, 2016
PSP on the front page of the New York Times!
Sylvia Rupani-Smith, long-time friend of CurePSP and strong advocate for the cause, brings PSP awareness to the mainstream media with her article abou...
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October 13, 2016
CurePSP Women’s Luncheon, New York, NY
In honor of Women and Prime of Life Brain Disease Research, CurePSP recently brought together the most eminent investigators and accomplished women to...
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October 10, 2016
New York Opens First Support Group!
We are very happy to announce our first support group in New York! Our New York Support Group Leader Training sessions in August were a great suc...
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October 10, 2016
First time fundraisers raise over $32,000!
Wine in the Hill CountryWe wish to congratulate Kary Cataldi for a hugely successful wine tasting event in Honor of Mark Witt on Saturday, Octobe...
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October 07, 2016
The role of caregiver; Kathryn Leigh Scott
Originally printed in The Timberjay.By Jodi Summit.Growing up on a small family farm outside of Minneapolis, Kathryn Leigh Scott loved to write and pu...
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September 13, 2016
UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s Disease
UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s DiseaseJun 24, 2016|a GenomeWeb staff reporter NEW YORK (GenomeWeb...
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August 24, 2016
CurePSP Receives Matching Grant Challenge for Genetics Research
Friedman family has committed up to $600,000New York, NY (June 29, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of li...
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August 24, 2016
CurePSP receives second matching grant from the Light Of Day Foundation
Leading worldwide music tour benefits neurodegeneration causes New York, NY (August 17, 2016) — CurePSP, the leading nonprofit advocacy organizat...
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August 09, 2016
Jennings Kroemer Putt For PSP
On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana.The day was a huge success, and CureP...
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