Latest News & Blogs from The Foundation
July 18, 2017
Other-World Imaginings, by John Royer
From our man on the inside, our PSP correspondent, John Royer.The following is a fictional story John wrote when in a depressed state in 2016, in...
News
July 14, 2017
A Good Mind In A Useless Body.
This very insightful article, by John Royer, our PSP correspondent, argues that PSP can’t take your loved one away if you don’t let it. I’v...
News
July 14, 2017
Presenting at the Addison Rotary Club, Dallas
John Burhoe Sr., Chair Emeritus of CurePSP, presenting to the Addison Rotary Club, DallasOn Friday, April 7, CurePSP Chair Emeritus and long-time neur...
News
July 07, 2017
Anti-Tau Drugs for PSP Move into Phase II
This article first appeared in MedPage Today (http://www.medpagetoday.com/meetingcoverage/mds/65883)by Kristina Fiore, Deputy Managing Edito...
News
July 06, 2017
Open Heart Surgery, by John Royer
Today I am going to write about something different.Earlier in one of my articles I said that I would not talk about the open-heart surgery but I’ve c...
News
July 06, 2017
Three Urso Student Summer Fellowship Grants Awarded
The Urso Summer Student Program in PSP Research supports students conducting summer research projects focused on progressive supranuclear palsy. This...
News
July 06, 2017
CurePSP-Affiliated Study Needs you!
Care Where It Counts: Understanding the Needs of People with PSP and Related DisordersGoals: People with Progressive Supranuclear Palsy and...
News
July 05, 2017
A Hospital Stay, by John Royer
In his 9th article, John Royer remembers a hospital visit where he discovered he had unknowingly suffered a stroke months prior. There is a...
News
July 03, 2017
Square patches of light remember you
This beautiful poem, by Bronte Nicole Ficek, originally published in Neurology, June 2017, is a tribute to her grandmother, Mercy...
News
June 12, 2017
A New Understanding of How Our Brains Work
Blue Brain Team Discovers a Multi-Dimensional Universe in Brain NetworksSource: NEUROSCIENCE NEWS, JUNE 12, 2017This article, appearing in N...
News
June 03, 2017
Coffee and Breakfast, by John Royer
This morning my wife said let’s go out to breakfast. I was a little bit reluctant because of my poor walking but I showed enthusiasm.My upper body was...
News
June 02, 2017
Update from John Royer, PSP Correspondent
This is article seven from John Royer, a man living as humorously as possible with PSP.Last night I was wondering about a cause for PSP.I thought abou...
News
June 01, 2017
Light Of Day Grant CurePSP $80,000
David Kemp, CurePSP President, with Tony Pallagrosi, Light of Day Executive Director, presenting the matching grant.Early in 2017, Tony Pallagrosi con...
News
May 31, 2017
Update from John Royer, PSP Correspondent
This is article six from John Royer, a man living as humorously as possible with PSP.It’s the middle of May and I feel better and I haven’t fallen onc...
News
May 25, 2017
New Criteria For PSP Diagnosis
New Diagnosis Criteria Established for PSP.In a groundbreaking development, an international collaboration of neurologists and movement disorder speci...
News
May 23, 2017
Update from John Royer, PSP Correspondent
This is article five from John Royer, a man living as humorously as possible with PSP. It is a day that is not so good for me. My mood is glum.I...
News
May 05, 2017
Update from John Royer, PSP Correspondent
This is article four from John Royer, a man living as humorously as possible with PSP. I thank the physical therapist that I have, namely Ryan Ma...
News
May 02, 2017
CurePSP Venture Grant Goes to Dr. John Steele.
Dr. John SteeleDr. John W. Steele has been awarded a CurePSP Venture Grant for a study titled “iCRISPRi in Human neurons and Glia to Elucidate Selecti...
News
May 02, 2017
Dr Troche Awarded a CurePSP Venture Grant
Dr. Michelle TrocheMichelle S. Troche, PhD/CCC-SLP, has been awarded a CurePSP Venture Grant for her research project titled “Developing Treatmen...
News
April 24, 2017
John Royer, thoughts of a PSP patient
This is the third installment from John Royer, our correspondent with PSP. See his first article here.See his second article here. You...
News
April 14, 2017
An Update From John, a PSP patient.
A short while ago we received a letter from John Royer, a man living with PSP, and we placed it on our blog. We suggested we could post mor...
News
April 06, 2017
A message from John, who has PSP.
This beautiful article was sent to us by one of our community, John Royer, who has PSP. Thank you John, for sharing these words. Auth...
News
April 04, 2017
Why Advocacy is Vital
Trish Caruana, Vice President – Patient and Carepartner AdvocacyIn this article, Trish Caruana, Vice President – Patient and Carepartner Adv...
News
March 23, 2017
$80,000 Matching Grant from the Light of Day Foundation!
IMPORTANT UPDATE!As of Wednesday, April 12, the CurePSP community had raised over $60,000! That puts us on track to beat all records for m...
News
January 27, 2017
Breakthrough in clearing toxic misfolded tau, in the Daily-Star, Jan 26
With $100 million from Rainwater family, brain research hits strideBY STEVE KASKOVICH, Star-Telegram, January 26More tha...
News
January 26, 2017
Anti-Tau Antibody Trial Enters Phase 2!
AbbVie Initiates Phase 2 Clinical Trial Programs for ABBV-8E12, an Investigational Anti-Tau Antibody, in Early Alzheimer’s Disease and Progressive Sup...
News
January 12, 2017
A children’s book, explaining PSP and other disorders.
One of our community,Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taki...
News
January 10, 2017
An article by one of our community
One of the CurePSP community has written this beautiful article on the intricacies of finding love again. Article by Joanna McFarland Owusu.Poste...
News
December 14, 2016
13-Year-Old Abby Sayre Starts CBD Fundraiser In Memory Of Grandmother Mary Kay
Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow.Mary Kay was diagnosed with Corticobasal Degeneration (CBD). C...
News
December 14, 2016
President Obama Signs 21st Century Cures Act
It is official! The 21st Century Cures Act has been signed into law by President Barack Obama. “We’re tackling cancer, brain disease,...
News
December 12, 2016
NINDS/NIH/NIA Funding Opportunity Announcement
NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application in...
News
December 05, 2016
CurePSP receives $200,000 from Nesbitt Charitable Foundation to fund two studies.
CurePSP donor funds two innovative studies of PSPNesbitt grant supports research into both care and cure Sarah Boone NesbittNew York, NY (Novembe...
News
November 29, 2016
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients
Ask a Doctor: Dr. Brent Bluett on PSPby Sylvia Rupani-SmithVery few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP,...
News
November 11, 2016
2016 CurePSP International Research Symposium
2016 CurePSP International Research Symposium October 27, Jersey City, NJ — Sta...
News
November 11, 2016
2016 CurePSP International Research Symposium
2016 CurePSP International Research Symposium October 27, Jersey City, NJ — Sta...
News
October 21, 2016
PSP on the front page of the New York Times!
Sylvia Rupani-Smith, long-time friend of CurePSP and strong advocate for the cause, brings PSP awareness to the mainstream media with her article abou...
News
October 13, 2016
CurePSP Women’s Luncheon, New York, NY
In honor of Women and Prime of Life Brain Disease Research, CurePSP recently brought together the most eminent investigators and accomplished women to...
News
October 10, 2016
New York Opens First Support Group!
We are very happy to announce our first support group in New York! Our New York Support Group Leader Training sessions in August were a great suc...
News
October 10, 2016
First time fundraisers raise over $32,000!
Wine in the Hill CountryWe wish to congratulate Kary Cataldi for a hugely successful wine tasting event in Honor of Mark Witt on Saturday, Octobe...
News
October 07, 2016
The role of caregiver; Kathryn Leigh Scott
Originally printed in The Timberjay.By Jodi Summit.Growing up on a small family farm outside of Minneapolis, Kathryn Leigh Scott loved to write and pu...
News
September 13, 2016
UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s Disease
UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s DiseaseJun 24, 2016|a GenomeWeb staff reporter NEW YORK (GenomeWeb...
News
August 24, 2016
CurePSP Receives Matching Grant Challenge for Genetics Research
Friedman family has committed up to $600,000New York, NY (June 29, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of li...
News
August 24, 2016
CurePSP receives second matching grant from the Light Of Day Foundation
Leading worldwide music tour benefits neurodegeneration causes New York, NY (August 17, 2016) — CurePSP, the leading nonprofit advocacy organizat...
News
August 09, 2016
Jennings Kroemer Putt For PSP
On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana.The day was a huge success, and CureP...
News